The Right to Know and the Right Not to Know : Genetic Privacy and Responsibility (Hardcover, 2 Revised edition)

Introduction: the right to know and the right not to know: seventeen years on Darren Shickle; Part I. Philosophical and Legal Issues: 1. The philosophy of the right to know and the right not to know Ruth Chadwick; 2. Autonomy Jorgen Husted; 3. Privacy and the right not to know: a plea for conceptual clarity Graeme Laurie; Part II. Issues in Genetics: 4. Biobanks and feedback: the right to know what other people know Kadri Simm; 5. Suspects, victims and others: producing and sharing forensic genetic knowledge Robin Williams and Matthias Weinroth; 6. Empowered by choice? Mairi Levitt; 7. DIY: the right to know your own genome Barbara Prainsack; 8. Genomics, inconvenient truths, and accountability Jeantine Lunshof and Ruth Chadwick; Part III. Emerging Issues: 9. The right to know and the right not to know in the era of neoliberal biopolitics and bioeconomy Henk ten Have; 10. The parental love argument against 'designing' babies: the harm in knowing that one has been selected or enhanced Anca Gheaus; 11. The inescapability of knowing and inability to not know in the digital society Richard Watermeyer; 12. The press and the public interest Joachim Allgaier; 13. The food we eat: the right to be informed and the duty to inform Michiel Korthals.