Genetic Databases : Socio-ethical Issues in the Collection and Use of DNA (Hardcover)

1. Introduction: Public Participation in Genetic Databases 2. Persons, Property and Gift: Exploring Languages of Tissue Donation to Biomedical Research 3. Blood Donation for Genetic Research: What Can we Learn From Donor's Narratives? 4. Levels and Styles of Participation in Genetic Databases: A Case Study of the North Cumbria Community Genetics Project 5. Informed Consent: The Contradictory Ethical Safeguards in Pharmacogenetics 6. Ambiguous Gifts: Public Anxiety, Informed Consent and Biobanks 7. Abandoning Informed Consent - The Case of Genetic Research in Population Collections 8. Children's Participation in Genetic Epidemiology: Consent and Control 9. 'Public Consent' or 'Scientific Citizenship'? What Counts as Public Participation in Population Based DNA Collections? 10. Tissue Collection and the Pharmaceutical Industry: Investigating Corporate Biobanks